The Edmond Sun

Local News

August 26, 2013

Firefighters urge locals to fill the boot for MDA

EDMOND — Just like any other kid, Caleb got a kick out of being shown around the garage at the Edmond Fire Department’s Fire Station 1. The 13-year-old’s eyes were wide with excitement when a firefighter showed him some of the tools used to fight fires.

Unlike most other kids his age, Caleb was confined to his wheelchair. But he is not defined by it, said his mother, Marlene Pendley.

She said in 2008 she learned Caleb has Duchenne Muscular Dystrophy (DMD).

“We saw some signs prior to that,” Marlene said. “Something wasn’t right.”

Caused by an absence of dystrophin, a protein that helps keep muscles intact, DMD is a genetic disorder characterized by progressive muscle degeneration and weakness, according to the Muscular Dystrophy Association.

DMD primarily affects boys, but in rare cases it can affect girls. Symptom onset is in early childhood, usually between age 3 — when muscle weakness can begin — and 5. The weakness first affects muscles of the hip, pelvic area, thighs and shoulders, and later the voluntary muscles in the arms, legs and trunk. By the early teens, the heart and respiratory muscles are affected.

In 2009, Caleb stopped walking, Marlene said.

The Muscular Dystrophy Association supports week-long summer camps, where kids like Caleb with neuromuscular disease discover a world created specifically for them, and they meet kids sharing the same needs and experiences, Marlene said.  

“He gained a lot of confidence,” she said. “When he first went to camp he came back a different kid. He came back stronger. He realized he wasn’t really all that different.”

Being at the fire station and the upcoming MDA telethon are a time when the community comes together to support kids like Caleb and to raise awareness about muscular dystrophy, Marlene said. MDA also has been a source of emotional support for her entire family, she said.

A star-studded celebrity lineup will appear on the MDA’s 48th annual telethon Labor Day weekend beginning at 8 p.m. Sept. 1 on ABC television stations across the country.

Called the MDA Show of Strength, it will feature: Ryan Seacrest; Backstreet Boys; country stars Luke Bryan, Darius Rucker and Lee Ann Womack; “Glee” star Matthew Morrison; Enrique Iglesias; Paula Abdul; teenage pop sensation Austin Mahone; hip-hop dance crew Jabbawockeez; “American Idol” runner-up Jessica Sanchez; Kenny Loggins; blues rock band Vintage Trouble; and Universal recording artist and star from the “The Voice” Chris Mann.

“This year, we’ll tell a powerful story of the progress we’re making and breaking developments under way in the fight against muscle disease,” said MDA President and CEO Steven Derks. “We want to share our vision of hope that new life-saving treatments are on the horizon as told through the eyes of courageous people fighting various neuromuscular diseases.”

Each year during the Labor Day weekend, Edmond firefighters are out at various city intersections where local residents drop donations into their boots. Fire Maj. Gary Dill was with Caleb to spread the word about the telethon.

Dill said firefighters will be out that Saturday and Sunday for sure and possibly Friday as well at high traffic areas like Second and Bryant, 15th and Bryant, 15th and Broadway and Kelly and Edmond Road. The money collected goes for research and things like Caleb’s wheelchair, counseling and the MDA camp, Dill said.

“We want to be out there to raise as much money as possible for those programs,” he said.

Local MDA coordinator Briana Steelman said it is exciting to see Caleb have a great time at the fire station and to promote the fill the boot campaign. MDA is helping about 2,000 families in the Oklahoma City metro area, Steelman said.

For more information about the Muscular Dystrophy Association and the telethon visit mda.org.

marks@edmondsun.com | 341-2121, ext. 108

1
Text Only
Local News
  • clinic 1.jpg Edmond church to host free eye clinic

    An Edmond church and Feed the Children are partnering to provide a free eye clinic.
    Individuals will be able to receive a free vision test and free prescription eye glasses from 9 a.m. to 3 p.m. Aug. 9 at the Waterloo Road Baptist Church, 3100 E. Waterloo Road. All ages are welcome and registration is not required.

    July 29, 2014 2 Photos

  • weather 1.jpg July could be coolest in weather record books

    With chances for soaking rains and unseasonably cool temperatures becoming frequent, a weather expert is increasingly convinced Oklahoma will end up with a historic July.
    At mid-afternoon Tuesday, the National Weather Service forecast for Edmond called for the high Wednesday to be near 73 with a 90 percent chance of heavy rain, followed by the high Thursday near 78 with a 30 percent chance of showers.
    Highs are expected to remain in the 80s into Monday.

    July 29, 2014 3 Photos

  • Downtown Master Plan accepted by council

    The 2014 Downtown Master Plan Study was accepted by a 3-0 vote Tuesday evening by the Edmond City Council.
    Fort Worth-based consulting group Freese and Nichols presented their final update to the 1998 Downtown Master Plan. The city hired the group at a cost of $300,000 to make recommendations for future development of Broadway in the central business district.
    “There are clearly some short-term (parking) options that we feel should move forward,” said Cody Richardson, of Freese and Nichols consultants of Fort Worth. “Better signage at existing parking lots.”

    July 29, 2014

  • UCO forensic volunteer wants to aid more agencies

    A four-person group of forensic investigators who volunteer their time to help smaller Oklahoma police departments isn’t enough to meet demand, a member said.
    Kama King, who recently completed her graduate research and will be a member of the faculty at the University of Central Oklahoma’s Forensic Science Institute, said outside of full-time jobs, members of the group volunteer to assist these agencies.
    As her career progresses, King hopes to help establish a permanently funded organization available to any agency in the state to assist in remains recovery as well as related training.

    July 29, 2014

  • Lambrecht Construction to build office

    The commercial site plan of a physician’s office was approved recently by the Edmond Planning Commission by a vote of 4-0.
    Lambrecht Construction plans to build the office at 3917  E. Covell Road in the Fairfax Business Office, north of Covell and west of Sooner Road, said Bob Schiermeyer, city planner.

    July 29, 2014

  • jc_ITS map.jpg More cameras monitoring Edmond motorists

    The Edmond City Council this week approved a services agreement with Electronic Technology, Inc. For the  installation of Intelligent Transportation Systems’ video wall system at a cost of $314,620. The vote was 3-0.
    ITS is a fiber optic, wireless or hybrid communication system of monitoring road events and equipment in the field, data archiving and predicting traffic volume, said Kent Kacir, an engineer with Kimley-Horn and Associates Inc.

    July 29, 2014 1 Photo

  • jc_Earp Marlin 2 - photo credit Noel Winters.jpg Shootout of a sale

    An original article of the Wild West will be made available at auction Thursday. The rifle of legendary lawman Wyatt Earp will be part of the J. Levine Auction & Appraisal’s Summer Quarterly Auction in Scottsdale, Ariz.
    Earp was an Arizona deputy sheriff and deputy town marshal in Tombstone, Ariz. He is legendary for playing a key role in the gunfight at the O.K. Corral. He died in 1929 at age 80.
    Wyatt Earp collector Barry Tapp of Edmond will be selling his 1895 Wyatt Earp Marlin rifle at the auction. The rifle has an estimated value between $50,000 and $75,000. It includes authentication documentation from Tombstone Heritage Museum, according to the auction house

    July 28, 2014 2 Photos

  • 11.6.12 Mother and Cub (2).jpg UCO forensic researcher answers key question

    After working a few human recovery cases on a volunteer basis with a variety of police departments, a question kept bugging Kama King.
    “You spend the whole day,” the UCO W. Roger Webb Forensic Science Institute student said, “sometimes days, searching for someone and only find a skull or a few bones and it just ate at me. Are we not finding this or is it not there to be found?”

    July 28, 2014 1 Photo

  • sales tax holiday.jpg Oklahoma sales tax takes a holiday

    Beginning at 12:01 a.m. on Friday, Aug. 1 and ending at midnight Aug. 3, Oklahomans will be able to participate in a sales tax holiday giving shoppers the opportunity to purchase certain clothing and shoes free of sales tax.
    Yes, retailers may not charge tax, including state and local sales taxes on items that are tax-exempt during the sales tax holiday weekend. The sales of clothing and shoes priced at less than $100 are exempted from sales taxes.

    July 28, 2014 1 Photo

  • Karan & Rwanda.jpg Peace through Business empowering women entrepreneurs

    Peace Through Business is part of the Institute for Economic Empowerment of Women (IEEW) based in Oklahoma City. It is a program that connects small business entrepreneurs in Afghanistan and Rwanda with business owners in Oklahoma. One such entrepreneur found out about the program from a friend, applied, and was accepted to take part in this year’s session.
    Upon earning a master’s degree in Civil Engineering from the Universite de Sciences et Technique de Lille in Belgium, Lyliose Nduhungirehe began her career working for a construction company in Brussels, but she quickly switched paths to Information Technology.

    July 28, 2014 1 Photo

Featured Ads
NDN Video
Weird 'Wakudoki' Dance Launches Promotional Competition Sadie Doesn't Want Her Brother to Grow Up Chapter Two: Designing for Naomi Watts Broken Water Main Floods UCLA "Maxim" Hotness! See Jessica Alba's Sizzling Spread Two women barely avoid being hit by train Orlando Bloom and Justin Bieber Reportedly Came To Blows In Ibiza Meet the Man Behind Dumb Starbucks Chris Pratt Adorably Surprises Kids at a 'Guardians of the Galaxy' Screening NOW TRENDING: Peyton Manning dancing at practice "The Bachelorette" Makes Her Decision Thieves pick the wrong gas station to rob Golden Sisters on '50 Shades' trailer: 'Look At That Chest!' Staten Island Man's Emotional Dunk Over NYPD Car - @TheBuzzeronFOX GMA: Dog passes out from excitment to see owner Baseball Hall of Famers Inducted 'Hunger Games: Mockingjay Part 1' Sneak Peek Florida Keys Webcam Captures Turtles Hatching Morgan Freeman Sucks Down Helium on 'Tonight Show' Robin Wright Can Dance! (WATCH)
Poll

The runoff race for the 5th District congressional seat is set for Aug. 26. If the voting were today, which candidate would you support?

Al McAffrey
Tom Guild
Undecided
     View Results